My name is Sandra and I write cozy mystery stories. I also blog about my life as a woman, a writer and a human being dealing with chronic illness. I’d love to hear from you! Thank you for visiting! x Sandra
Today is an incredibly exciting but also scary day for me. Because today I am launching a fundraiser in partnership with CrowdChange and Open Medicine Foundation to raise money for research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)! That’s right! I’m organising a fundraiser! This month means 20 years of living with ME/CFS for me. To … More MY FUNDRAISER FOR ME/CFS RESEARCH
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is a very long and confusing term for an illness that is itself still shrouded in a lot of mist. Many of us deal with similar symptoms, such as fatigue, headaches, muscle aches and what we call brain fog, but a biological cause is yet to be found and a clear … More MY ME/CFS FUNDRAISER: What is ME/CFS?
A big change! I’m no longer using a pseudonym! There are a few reasons for this, but the most important one is that I no longer want to hide my true self behind a fake name. Life has been full of change this past year and a half and throughout it I needed a pseudonym … More Name Change: From Pseudonym to the Real Deal
This piece has been very hard to write, but I know – feel – that I have to share it with you. When I was 14 and my viral infection turned into a long-term illness, I received zero support from medical professionals. By zero I don’t use hyperbole. It was literally zero. I saw different … More “You’ll be fine, it’s just a virus”: Why Long Covid Cannot Be Treated the Way ME/cfs Has Been
Dit stuk was erg moeilijk om te schrijven, maar ik weet – voel – dat ik het moet delen. Toen ik 14 was en mijn virale infectie veranderde in een chronische ziekte, kreeg ik geen enkele ondersteuning van medische professionals. En als ik zeg nul is dat niet overdreven. Letterlijk niemand steunde mij. Ik ging … More “Ah joh, gewoon gaan sporten!”: waarom we met Long Covid beter moeten omgaan dan we ooit met ME/cvs hebben gedaan