Today is an incredibly exciting but also scary day for me. Because today I am launching a fundraiser in partnership with CrowdChange and Open Medicine Foundation to raise money for research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)! That’s right! I’m organising a fundraiser! This month means 20 years of living with ME/CFS for me. To … More MY FUNDRAISER FOR ME/CFS RESEARCH
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is a very long and confusing term for an illness that is itself still shrouded in a lot of mist. Many of us deal with similar symptoms, such as fatigue, headaches, muscle aches and what we call brain fog, but a biological cause is yet to be found and a clear … More MY ME/CFS FUNDRAISER: What is ME/CFS?
I don’t know about you, but for me the new year isn’t really starting off with a feeling of all that is new and promising. Hard lockdowns are either in place or extended. Hospitals are getting overrun and doctors are having to make heart wrenching decisions all over the world as cases increase rapidly in … More New Year. New Beginnings. (Sorta) (Maybe)
Nothing makes you reminisce like the ending of a year. At least, normally it does. But this year everything is different and even reminiscing feels odd. It has been such an unprecedented one in so many ways and so reflecting on a year like this one is quite unfair. Because it often goes hand in … More End of A Year
It has been a while since I didn’t post at least twice a week. I did want to post this piece last week, but writing it didn’t come easy and so I felt a week of quiet was perhaps what I needed, aside from organising the card exchange. Because being honest and open online can … More Vulnerability Hangover